Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study.

BACKGROUND: End-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in their hospitals. This study aimed to identify and explore barriers and facilitators to the implementation of EoL care volunteer services in the five hospitals. METHODS: Volunteer coordinators (VCs) from the Netherlands (NL), Norway (NO), Slovenia (SI), Spain (ES) and United Kingdom (UK) participated in a focus group interview and subsequent in-depth one-to-one interviews. A theory-inspired framework based on the five domains of the Consolidated Framework for Implementation Research (CFIR) was used for data collection and analysis. Results from the focus group were depicted in radar charts per hospital. RESULTS: Barriers across all hospitals were the COVID-19 pandemic delaying the implementation process, and the lack of recognition of the added value of EoL care volunteers by hospital staff. Site-specific barriers were struggles with promoting the service in a highly structured setting with many stakeholders (NL), negative views among nurses on hospital volunteering (NL, NO), a lack of support from healthcare professionals and the management (SI, ES), and uncertainty about their role in implementation among VCs (ES). Site-specific facilitators were training of volunteers (NO, SI, NL), involving volunteers in promoting the service (NO), and education and awareness for healthcare professionals about the role and boundaries of volunteers (UK). CONCLUSION: Establishing a comprehensive EoL care volunteer service for patients in non-specialist palliative care wards involves multiple considerations including training, creating awareness and ensuring management support. Implementation requires involvement of stakeholders in a way that enables medical EoL care and volunteering to co-exist. Further research is needed to explore how trust and equal partnerships between volunteers and professional staff can be built and sustained. TRIAL REGISTRATION: NCT04678310. Registered 21/12/2020.

[Emergency admissions from nursing homes to hospital at the end of life]. / Akutte innleggelser fra sykehjem til sykehus i livets sluttfase.

BACKGROUND: Admissions from nursing homes to hospital at the end of life have not been previously studied in Norway. The goal of this project was to document acute admissions to a Norwegian hospital for patients who died within 48 hours after hospitalization. MATERIAL AND METHODS: This study is based on information recorded in patient charts for admissions to Haraldsplass Deaconess Hospital, Bergen in the period 1.10. 2007-30.9.2008. Patients who were admitted from nursing homes and died within 48 hours after admission to the hospital were eligible for inclusion. Cooperation between nursing homes and the hospital and whether patients received appropriate palliative care was analysed. RESULTS: 26 patients, mean age 85.3 years, were included in the study. All of them had internal medicine problems. 12 patients had been assessed by a physician before admission. 14 patients had a written referral from a doctor and 18 patients had a note from a nurse. For eight patients no information was given about what was expected from the hospital and for four patients there was no information about medication. No documentation was available about verbal contact between the institutions before the admissions. In the hospital, diagnostic procedures were used for 24 patients and potentially life-prolonging treatment was started for 23 patients. Morphine was prescribed for 18 patients. INTERPRETATION: The results show that nursing home residents have inadequate access to physicians, and indicate that competence concerning evaluation of critically ill patients in nursing homes must be improved. Hospital physicians used a treatment focus in their patient approach. The cooperation and communication between nursing homes and the hospital functioned badly. Palliative care should be improved both in the hospital and the nursing homes.